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Story from Jam Press (Rare Muscle Disease)
Pictured: John at the gym.
‘I have a rare muscle disease that forces me to CRAWL around the house – bullies call me SLUG FEET,' says bodybuilder
An award-winning bodybuilder reveals he was called “chicken legs” due to a rare muscle-wasting disease – now he’s defying the odds.
John Nixon didn’t have an easy life growing up and struggled to fit in with his peers at school as he “looked and walked differently” from everyone else.
The branch manager, from Barnsley, South Yorkshire, has a disease known as Charcot Marie Tooth, CMT, which has caused lasting damage to the muscles in his legs and feet.
Due to this, he’s been mocked for the way he walks and has been called names such as “slug feet” and “chicken legs”.
Now, he’s sharing his story to inspire others after transforming his body and life, to become a triple award-winning bodybuilder.
“It’s a nasty disease that cruelly tries to take away [my] independence – it’s like a computer virus,” John, 44, told What's The Jam.
“It attacks and we have to find ways to combat it.
“But, it inevitably finds a way around, so we have to work harder to beat it.
“Inside the house, I crawl around at times and go up and down the stairs on my bum.
“I also have to crawl into the shower, but I’m grateful that I can even do this.”
John didn’t receive an official diagnosis until he was 12 years old after his parents took him to the doctor following a series of issues.
He said: “I had muscle wastage in my lower legs, feet deformity, including a high arch, hammer toes and bunions.
“I also suffered with rolling ankles, dislocations, strength and balance issues.
“I could never find a suitable pair of footwear, I struggled to run and was noticeably smaller – and weaker – than other boys.
“[In school], I loved sports, but struggled to play – particularly football, running and field sports.
“I walked very differently,
2024-03-25
Jam Press/East News
Jam Press
Jam_Press_JMP459492
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